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www.achse-online.de www.achse-online.de 11000 $ 114K achse-online.de allianz chronischer seltener erkrankungen - startseite - achse e.v.
menschen mit seltenen erkrankungen haben mit vielen einschränkungen und belastungen zu kämpfen. in der achse unterstützen sie sich gegenseitig. das netzwerk bündelt ressourcen und know-how und verschafft den „seltenen“ gehör.

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vogliamo mettere la parola cura su ogni malattia genetica.

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www.rarediseasesnetwork.org www.rarediseasesnetwork.org 0 $ 10.9K rarediseasesnetwork.org rare disease - you can contribute to rare diseases research and treatment!
finding new approaches to diagnosis, prevention, and treatment of rare diseases and disorders - the national institutes of health rare diseases clinical research network (rdcrn) was created to facilitate collaboration among patients and experts in many different types of rare diseases.

www.eucerd.eu www.eucerd.eu 45 $ 10.9K eucerd.eu eucerd
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www.aoporphan.com www.aoporphan.com 55 $ 9.8K aoporphan.com


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www.raredisease.org.uk www.raredisease.org.uk 25 $ 7.9K raredisease.org.uk rare disease uk - the national alliance for people with rare diseases and all who support them
rare disease uk - the national alliance for people with rare diseases and all who support them

www.angelman.org www.angelman.org 320 $ 7.9K angelman.org angelman syndrome foundation
angelman syndrome foundation

www.globalgenes.org www.globalgenes.org 1200 $ 6.1K globalgenes.org allies in rare disease - global genes
global genes mission is to connect, empower and inspire the rare disease community. learn more about our events, resources and communities.

www.rare-diseases.eu www.rare-diseases.eu 0 $ 5.9K rare-diseases.eu ecrd 2014 : the european conference on rare diseases & orphan productsthe rare disease puzzle: bringing the picture to life
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www.alexionpharma.com www.alexionpharma.com 50 $ 5.8K alexionpharma.com alexion ph*rmaceuticals, inc (nasdaq: alxn) | world leader in treatments for patients with devastating and rare diseases
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www.raregenomics.org www.raregenomics.org 100 $ 5.7K raregenomics.org rare genomics institute - home
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rare disease united's mission is to build a strong rare disease community throughout the usa, help provide support, information raise awareness & advocate for families.

www.eu-patient.eu www.eu-patient.eu 130 $ 800 eu-patient.eu start page
start page

www.mgz-muenchen.de www.mgz-muenchen.de 150 $ 400 mgz-muenchen.de startseite - medizinisch genetisches zentrum
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www.recordatirarediseases.com www.recordatirarediseases.com 30 $ 200 recordatirarediseases.com home | recordati rare diseases
at recordati rare diseases, we focus on the few - those affected by rare diseases. we believe that every single patient has the right to the best possible treatment.

www.ern-rnd.eu www.ern-rnd.eu 20 $ 200 ern-rnd.eu ern-rnd | european reference network on rare neurological diseases - for rare or low prevalence complex diseases
ern-rnd | european reference network on rare neurological diseases - for rare or low prevalence complex diseases

www.endo-ern.eu www.endo-ern.eu 10 $ 100 endo-ern.eu endo-ern | european reference network on rare endocrine conditions
endo-ern , european reference network on rare endocrine conditions, european reference network on rare endocrine conditions. endo-ern’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine disorders in europe, through facilitating knowledge sharing and facilitating related healthcare and research.

www.irdirc.org www.irdirc.org 20 $ 100 irdirc.org irdirc - international rare diseases research consortium
international rare diseases research consortium

www.erare.eu www.erare.eu 0 $ 100 erare.eu era-net e-rare | era-net for research programmes on rare diseases
era-net e-rare | era-net for research programmes on rare diseases

www.ejprarediseases.org www.ejprarediseases.org 0 $ 100 ejprarediseases.org ejp rd - european joint programme on rare diseases
ejp rd - european joint programme on rare diseases

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feder - federación de enfermedades raras

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www.everylifefoundation.org www.everylifefoundation.org 0 $ 0 everylifefoundation.org everylife foundation for rare diseases
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www.rareconnect.org www.rareconnect.org 0 $ 0 rareconnect.org connecting rare disease patients globally - rareconnect
rareconnect promotes global conversation and collaboration to improve the lives of rare disease patients and *ssist the organizations that serve them. rareconnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.

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the main objective of rare disease day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.

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efpia homepage

www.ern-net.eu www.ern-net.eu 0 $ 0 ern-net.eu user's blog! | just another wordpress site
user's blog! | just another wordpress site

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american gene technologies™ (agt) is a gene and cell therapeutics company with a proprietary lentiviral platform capable of broad applications.

www.ern-euro-nmd.eu www.ern-euro-nmd.eu 0 $ 0 ern-euro-nmd.eu european reference network - euro-nmd - european reference network for neuromuscular diseases
european reference network - euro-nmd - european reference network for neuromuscular diseases

www.dna-diagnostik.hamburg www.dna-diagnostik.hamburg 0 $ 0 dna-diagnostik.hamburg dna-diagnostik hamburg : gemeinschaftspraxis für humangenetik und genetische labore - ihre partner für genetische beratung und diagnostik in hamburg.
genetische beratung in unserer genetischen beratung können fragen zu erkrankungen, fehlbildungen oder anderen merkmalen, die mit einer möglichen erblichen ursache einhergehen, erörtert werden. wir bieten genetische beratungen zu allen themen der humangenetik an.

www.rarevoices.org.au www.rarevoices.org.au 0 $ 0 rarevoices.org.au peak body for australians with rare diseases including genetic disorders
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rare diseases international is the global alliance of people living with a rare disease of all nationalities across all rare diseases

www.gardn.org.au www.gardn.org.au 0 $ 0 gardn.org.au home | genetic and rare disease network
helping genetic and rare disease support groups deliver quality support and services to individuals and families affected by genetic and rare conditions.

www.sparks.org.uk www.sparks.org.uk 21000 $ 241K sparks.org.uk for children's health « sparks
for children's health « sparks

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groupama, fondation d'entreprise, la fondation groupama pour la santé soutient la lutte contre les maladies rares, les maladies orphelines.

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www.gendia.net www.gendia.net 4500 $ 28.9K gendia.net gendia | home page
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la mission de l’alliance maladies rares est de susciter, de développer, sur les questions communes aux maladies rares et aux handicaps rares, d’origine génétique ou non, toutes actions de recherche, d’entraide, d’information, de formation et de revendication.

www.orphanet.org www.orphanet.org 0 $ 25K orphanet.org orphanet
the portal for rare diseases and orphan drugs

www.rarediseaseday.us www.rarediseaseday.us 456 $ 14.6K rarediseaseday.us rare disease day usa | alone we are rare. together we are strong.
rare disease day usa | alone we are rare. together we are strong.

www.progeriaresearch.org www.progeriaresearch.org 50 $ 13.7K progeriaresearch.org the progeria research foundation | together, we will find the cure!
located in peabody, ma, the progeria research foundation was formed to discover the cause and find the cure for progeria.

www.mdmag.com www.mdmag.com 2450 $ 13.5K mdmag.com hcplive
hcplive is a comprehensive clinical news and information portal that provides physicians with up-to-date specialty and disease-specific resources designed to help them provide better care to patients. at hcplive, you will find breaking news, video interviews with physician experts, in-depth conference coverage, finance and practice management updates, insight and an*lysis from physician contributors, and more.

www.vaincre-les-maladies-rares.com www.vaincre-les-maladies-rares.com 0 $ 11.9K vaincre-les-maladies-rares.com maladies rares, maladies orphelines - fondation groupama pour la santé
groupama, fondation d'entreprise, la fondation groupama pour la santé soutient la lutte contre les maladies rares, les maladies orphelines.

www.vulgaris-medical.com www.vulgaris-medical.com 2175 $ 11.5K vulgaris-medical.com site santé, encyclopédie médicale, info, dictionnaire médical, définition. - vulgaris médical
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www.xpertdox.com www.xpertdox.com 265 $ 3.1K xpertdox.com xpertdox: rare diseases | find a doctor | find a hospital
content='find an expert doctor or hospital using a personalized and unbiased 360 degree *ss*ssment.'

www.hae-awareness.net www.hae-awareness.net 0 $ 1.9K hae-awareness.net


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discover a full-service ph*rmaceutical advertising agency dedicated to patient communications and marketing health brands.

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www.mindgoody.com www.mindgoody.com 15 $ 900 mindgoody.com mindgoody | goodies for your mind
mindgoody | goodies for your mind

www.syringomyelia.ca www.syringomyelia.ca 0 $ 100 syringomyelia.ca carion fenn foundation - home
the carion fenn foundation is a registered charity established to provide support, education and resources through a variety of health and wellness programs that are free to the public including mental health, counselling, youth & seniors, rare disease expo, health 180 with carion fenn on rogers tv durham and more. our goal is to address the needs of individuals and ensure that no one who is impacted by the physical, emotional or social symptoms of chronic or rare diseases has to go through such devastating challenges alone. as a federal charity, we evaluate the importance of implementing our programs in different cities and towns to help support community members.

www.rasopathiesnet.org www.rasopathiesnet.org 0 $ 100 rasopathiesnet.org home - the rasopathies network
welcome

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